Alzheimer’s and Valentine’s

Alzheimer’s is cruel. It has been experienced by so many families that a writer does not have to go to pains to explain it. We all know what it does but no one knows how to stop it.

Alzheimer’s and Valentine’s may not seem a natural combination, but it is if you love someone with the disease.

Laura Anderson Mercer has been my friend since we sat next to each other in a newsroom in the early 1980s. She was an executive at a public relations agency when she was diagnosed with early onset Alzheimer’s before she was 50.  For Valentine’s Day, her husband, Greg, wrote a letter to Laura that was published Sunday in The Charlotte Observer.

Greg sent me the link and tears came to my eyes as I read it. I started to type a comment below the column but picked up the phone instead. I hadn’t spoke to Laura and Greg since a visit last spring.

It is a delight to have long-term friends who are still so much in love.

Laura was glad to hear that I had seen the column and updated me on her daughter’s wedding plans. Greg said that he has been told that he has a mature version of the ability to “make the young girls cry” that Barry Manilow sang about. Instead, Greg said, he can write essays that “make middle aged women cry.” That he can. I’ve seen him do it before.

Laura and Greg work to support Alzheimer’s research and Laura is in a promising clinical trial of a drug that’s designed to help rejuvenate brain cells. They were honorary co-chairs of last year’s Charlotte Memory Walk and they regularly speak to groups about early onset Alzheimer’s. Laura knows it’s important for her to stay physically active. A few years ago, I chased her down a beach until I nearly collapsed. Last spring, she took me to a challenging water aerobics lesson at the Charlotte YMCA and insisted I stay up front with her during the session, instead of chatting with the less vigorous group in the back.

Laura has always loved to write and has a blog, “Live Life to the Fullest.” The Charlotte Observer published a feature about Laura in 2009.

Happy Valentines Day to Laura and Greg, to my father and everyone else whose lives are touched by Alzheimer’s.

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The Many Faces of Social Media

With time and energy and a New York geocode, I filled Social Media Week 2011, Feb. 7-11, with sessions that stretched my mind and my definition of social media.  Toby Daniels, founder and executive director of Social Media Week, and his team brought in top speakers and sponsors to produce a rich program in enticing venues. Perceptions of social media varied from room to room.

Marketers mine real-time social media for emerging issues that their clients can profit from, or possibly lose money on if they are not addressed. If you want to capitalize on pop culture moments in social media, “you need to be there with them in real time,” said Shiv Singh, head of digital for PepsiCo Beverages, during a panel discussion on social listening.

Real-time information also can promote humanitarian goals, particularly at times of crisis. At a program at the Paley Center on the Media sponsored by the United Nation’s Global Pulse, Corinne Woods, director of the UN Millennium Campaign, said immediate feedback can remove bottlenecks and speed solutions. Opportunities are lost, she said, if agencies wait for field workers to publish a report.

Speaking at Google’s New York headquarters, Alan Spector, vice president of Research and Special Initiatives, told how crowdsourcing and real-time information helped Google.org add details in Map Maker and reunite people with people finding tools after the 2010 earthquakes in Haiti and Chile.

For many, Facebook is the face of social media. The social network was a common thread during the week, but speakers gave it more identities than “The Three Faces of Eve.”

In a keynote interview at Google, Doug Rushkoff, a media theorist whose most recent book is “Program or be Programmed: Ten Commands for a Digital Age,” said “We talk more about Facebook than it deserves. Facebook is an easy way not to use HTML.”

At a session with marketers on social listening at JWT, one of the largest advertising agencies in the world, open access to all Facebook conversations was called the “Holy Grail.” Facebook is so attractive because it is more about personal experience than Twitter. Panelists bemoaned being only able to see a slice of what is happening on Facebook.

“Twitter feels like a public forum, whereas Facebook feels like a cocktail party,” said Brian Clark, chief executive officer of GMD Studios. He also said that good social listening is closely related to stalking, warning that the novelty of consumers finding that a brand is listening could be replaced by creepiness.

A creepy feeling had come days earlier while sitting in Google’s auditorium after enjoying a free lunch from the company. A panel considering the Internet and uprisings in the Arab world warned that users cannot rely on capitalistic businesses like Facebook, Twitter and even our host, Google, to do the right thing.

Susannah Vila, director of content and outreach for Movements.org, said American’s privacy concerns about Facebook are nothing compared to those of people in oppressive countries. She said her group has lobbied Facebook to add HTTPS to its accounts throughout the world, but the company has resisted because the change is costly.

“Facebook has democracy like Singapore has democracy,” said Micah Sifry, co-founder and executive editor of the Personal Democracy Forum. He said he was “terrified of relying on corporate entities” for digital media. He cited the blacklisting of Wikileaks by Amazon as an example how companies can “arbitrarily kick people off the cloud.”

“Nothing is really private,” said Adam Penenberg, a former investigative reporter who now teaches journalism at New York University. “Anonymity and privacy are very different.”

Facebook Connect got credit in several sessions for making conversations on the Web less anonymous. A speaker at a marketing session noted that newspapers are finding that comments are higher quality when people identify themselves.

The group Anonymous and anonymity got attention at a program on Wikileaks held on the 44th floor of the Hearst Tower, with a view overlooking Central Park. The focus of the session was the absence of an international Bill of Rights for online users, personal responsibility and questions about when online civil disobedience, including denial-of-service attacks, cross over into crime.

“Anonymity is something you need to preserve. If they don’t win this thing, there are going to be a lot of dead Twitterers,” said John Perry Barlow, co-founder of Electronic Frontier Foundation and a former lyricist for the Grateful Dead, a few days before Hosni Mubarak ended his authoritarian rule of Egypt.

Barlow spoke at a session dealing with strong encryption, the ability of TOR to protect identity, international secrets and FCC rules, and even there Facebook was discussed. “Facebook seems like a global suburb,” Barlow said. “It’s the same nutrition as high fructose corn syrup but not a complete and balanced diet.”

That social media has a strong connection was clear during Social Media Week. Most sessions were free and many featured breakfast snacks, lunch or, later in the day, open bars. Locations included the Hearst Tower, Red Bull, the Paley Center for Media, The New York Times, a stately room beyond a “staff only” sign at the New York Public Library, and, of course, Google.

It’s not easy to get into the New York Stock Exchange, perhaps the most security-conscious building in New York, but Social Media Week did the trick as Paul Murphy of the Financial Times talked about the recent launch of FT Tilt, followed by  ”News Dissemination in a Social Finance World”, coordinated by StockTwits. The conversations at the bar and on the panel along with the venue’s 20-foot ceilings, marble halls and thick Oriental carpets were all about money.

Investors are not casual readers. They are, Murphy said, “readers who sit forward at their desks looking for news that will make them money.” Financial reporters may find Twitter helpful, but investors are concerned with accuracy and they will pay for curation and insight.

A presentation representing much money and a model also based on curation had Brian Farnham, editor in chief of Patch, speaking at the Paley Center two days after AOL announced the purchase of The Huffington Post for $315 million. After launching its first three sites in February 2011, AOL’s Patch ended 2010 with 800 sites. Farnham said he wants to have 1,000 by the end of the year. According to The New York Times, AOL said it spent up to $50 million on Patch in 2010.

The session, “Building Hyperlocal at Scale,” was more about new media than social media. I signed up to better understand how Patch could be sustained. Certainly, local news is an important commodity and most communities are underserved, but the strength of Patch’s business model was not made clear and there was no insight on how Huff-Po might collaborate.

Patch, Farnham noted, hired more journalists last year than any other company. For those interested in jobs, he said that Patch looks for “Four Virtues:” community journalism experience, Internet savvy, local knowledge and – most important – passion.

One more note about Facebook: I didn’t update my status all week. I was too busy in the physical world.

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Inside Google: Social Media Week

Social Media Week 2011 is occurring Feb. 7-11 in New York and eight other cities around the world. More than 150 events are being offered in New York, most of them free and overlapping.  Deciding where to go required thought. A venue can be as great a lure as a topic.

“If Your Real Life Were A Social Network” on Monday morning was presented at Google’s offices in the huge building that once housed the Port Authority of New York and New Jersey. Getting inside the building, which occupies an entire city block in Chelsea, seemed a good place to start the week.

The session, sponsored by SapientNitro, featured four Ph.D.s, one self-proclaimed capitalist and vignettes created using XtraNormal, a Web site with the motto “if you can type, you can make movies.”

A striking metaphor derived from the micro architecture of the brain came from Dr. Alison Barth, associate professor at the Center for the Neural Basis of Cognition at Carnegie Mellon University. Her research found, she said, that all neurons are not created equal. Some neurons in a part of the cerebral cortex responsible for important functions are more active and more connected,  she said. “Hmmm,” the audience seemed to say. This seems to make things work better, she said adding that “information is lost when all neurons are equally active.” (This was the first I heard of this research but as the mother of a neurobiology Ph.D. candidate, I found more information.)

Along those lines, Duncan Watts, another Ph.D. and principal research scientist at Yahoo, noted that a low percentage of the millions of people on Twitter are active daily — even once daily. (Was it my imagination or did the audience stop Twittering at once and suddenly sit taller?)

Watts also maintained that our social networks have not changed as much as most suspect. While people might have Facebook friends in the hundreds, the number of an individual’s close associates have not changed. What has changed is the ability to measure. Now, a number can be put on how many Facebook friends and LinkedIn connections we have.

A replication of the six degrees of separation experiment of Stanley Milgram in the 1960s, Watts said, found that the social world has not gotten smaller in recent decades. He said that an e-mail version of the experiment it took “about seven” connections to link random people.

Shayla Theil-Stern, another Ph.D. and an associate professor of journalism and mass communication at the University of Minnesota, talked about the difference between  real status and “social media status,” particularly among young people. Basically, people on social media — young and old — exaggerate.

Chris Mahl, senior vice president and chief brand alchemist at SCVNGR (pronouced scavenger), said the public has a powerful voice in the direction of digital commerce. “Consumers are now telling technologists what matters,” he said. If consumers look at a product and think “I don’t get it,” the product will fail, he said.

That said, during the presentation I downloaded SCVNGR, described on its Web site as “a game all about going places, doing challenges and earning points.” I searched for the Google building and checked in. Later that day, I got a message that Mahl wanted to be my friend.

Here’s some examples of the aforementioned Xtranormal videos: Superhero, Mayor, Overqualified, Party Photos and Sandwich Genius

I didn’t get a chance to see much at Google beyond the 4th floor auditorium but nothing conflicted with the widespread belief that it is a good place to work. Security in the lobby consisted of checking each attendants name off a list and finding a nametag printed out with that name.  We were pointed to the elevator but not escorted. In fact, I went up to the wrong floor, got out, looked around and then realized my mistake. On the correct floor, visitors were offered a coat check. Coffee, pastries, muffins and fruit awaited in the auditorium. The GoogleGuest Wi-Fi was fast, smooth and did not require a password. (Companies that invite you in but make you locate a password for Wi-Fi is a pet peeve of mine.)

I stayed at Google for the next session — The Internet & Uprisings in the Arab World: Are We Already In A Post-Social Media World? — and was rewarded with a free lunch: wraps, green salad, pasta salad, brownies and oatmeal cookies. I only sampled three of those.

It was strange to be enjoying Google’s real estate while listening to panelists point out the danger of trusting capitalist digital businesses, but Google actually got off light. Facebook, it seemed, did not have many friends on the panel.

Susannah Vila, director of content and outreach for Movements.org, pointed out that the privacy concerns about Facebook in the United States are nothing compared to those of people in oppressive countries. She said her group has lobbied Facebook to add HTTPS to its accounts throughout the world, but the company has resisted because the change is costly.

“Facebook has democracy like Singapore has democracy,” said Micah Sifry, co-founder and executive editor of the Personal Democracy Forum. He said he was “terrified of relying on corporate entities” for digital media. He cited the blacklisting of Wikileaks by Amazon as as an example how companies can “arbitrarily kick people off the cloud.”

“There is no habeas corpus on Facebook,” Sifry said, adding that “the process of getting your profile back is obscure.”

The third panelist, Adam Penenberg, a former investigative journalist who is now an assistant professor of journalism at  New York University, said he had a Facebook account but doesn’t use it.

Social media did not cause the protests in Egypt and Tunisia but it might have accelerated the pace, the panelists said.

“Plain old media — in the form of Al Jazeera — also contributed, said Adam Penenberg, a former investigative journalist who is now an assistant professor of journalism at  New York University.

Sifry said the main forces at work in Egypt are the increased availability of mobile phones coupled with blocked aspirations were the main forces: “rising connectivity and declining sense of hope.”

Although it remains unclear how the shutdown of the Internet in Egypt occurred, Sifry said the government might have “mistakenly thought it was a Facebook revolution.”

“They thought turning off the Internet would stop the protest but it didn’t,” Vila said.

“No one had to tell Egyptian people why they were unhappy,’” observed one audience member.

John C. Abell, the New York bureau chief for Wired and the moderator of the panel, said he believed some of the “social media ranting” was intended to get the attention of America. He cited the saying that “your not famous unless your famous in America.”

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A work in progress

I know an editor who invited a photojournalist, another colleague, to record the birth of her baby for publication. I, however, believe access to the delivery room should be restricted.

Only a select few will see this site in it’s current state but this post can record the beginning.  It may not be a beautiful child yet, but it is mine.

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